Wednesday, November 16, 2016

Primary Children's Hospital Fundraiser

As a family we are collecting coloring books, toys, blankets, books, puzzles, craft kits and more to donate to the children at Primary Children's Hospital.  If you would like to join us in this effort by donating items or making a cash donation for the purchase of these items, please let us know!  All items will be delivered on December 28th, the day of Kambri's last surgery!  THANK YOU!
To make a donation contact: 
Stephanie (435)760-5065
strawn05@hotmail.com 

Wednesday, November 16, 2016

It's been a little while so I think it's time for an update.  We are enjoying a little break from the life of surgery.  We have about a month and a half before we hit it hard once again.  This will be the last and final reconstruction surgery and the most exciting, they will restore hearing & the ear should function after this one!  We are excited for that!

In addition to Microtia-Atresia, Kambri has hemifacial microsomia which means that the right side of her face is underdeveloped and does not grow normally.  We've known that this could cause problems for her jaw since she was a baby.  Our dentist keeps a close eye on her and at our last appointment recommended that we see a specialist.  This week we met with him and he confirmed that surgery is not necessary at this point.  Although it does veer to the right, the jaw seems to be lining up and functioning properly.  We were grateful for good news!
{you can see that the right (appears on the left in the picture) joint is deformed and significantly smaller than the other side.  They will probably do surgery when she is about 15 years old to correct this}


When they removed the skin tag on her cheek, it caused her cute little cheek to cave in.  Because of development, that side of her face has always been smaller but removing the skin tag has made it more noticeable.  The skin tag held more substance than we realized.  We are exploring options to fix that which may mean another surgery in the near(ish) future.

We continue to be blown away by her positive attitude and courage to conquer hard things! 

{Photo Credit: Stacey Hansen Photography}